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Suitable social and peer support groups are locally available for people living with dementia and carers.

You may find it beneficial to attend local community groups to build social contacts with other people living with dementia and their carers’. A variety of different groups are available at a range of times and locations to meet different individual interests and support needs. You will be able to ask questions about how to access support and learn from the experiences of others. The friendship and companionship these groups offer can help you feel less isolated and keep you better informed of services and resources.
 
For extra information, evidence and best practice please scroll down to the bottom of the page.

Regional offerings

LGBTQ+ Online Support Group for People With Dementia and Their Carers in Greater Manchester

Meets online 1st Tuesday of the month. People with dementia and family/carers are welcome to join.
Contact Maggie Hurley - to get the details to join the meeting.
Email: Maggie.Hurley@ageukoldham.org.uk
Weblink: https://dementia-united.org.uk/news/2021/07/13/new-gm-lgbtq-online-dementia-support-group/

Dementia Carers Expert Reference Group (DCERG)

Working with Dementia United to ensure the carers voice is central for influencing policy and commissioning for dementia care and support.
Email: gmhscp.dementiaunited@nhs.net

Dementia Awareness Community training package

A dementia diagnosis can bring with it many changes and challenges. But arguably one of the hardest challenges is the isolation that can come with loss of confidence and difficulties accessing community resources; whether that’s accessing a leisure centre for a morning swim, visiting a local art group, or having a nice meal out.

There is growing evidence to suggest that art, music and leisure activities can offer physical and psychological benefits to those living with a dementia and their care partners, benefits which can improve their brain health and help them maintain independence for longer: (https://arts4dementia.org.uk/sp/).

This is why Trafford and Wigan councils have come together with Dementia United and GreaterSport to fund an exciting piece of work which will empower community groups, businesses and leisure providers to support people living with cognitive impairment and dementia in their communities.

Working in partnership, Made by Mortals and Together Dementia Support have developed an immersive training experience co-produced and shaped by people living with dementia and their care partners.

The complete training package can be accessed here: www.madebymortals.org/dementia-resource/. This resource includes an immersive audio experience and PDF training materials. Dementia United are currently seeking expressions of interest from localities who would like to work with us to coordinate a train the trainer package for their communities, this will include a 3 to 4-hour workshop hosted by instructors with significant training and dementia experience and individuals who have lived experience of dementia.


IDoService

The IDoService project aims to develop a service for people living with mild to moderate dementia. The service will help them to continue to be part of society. You can find more information here: https://www.mmu.ac.uk/research/research-centres/msarc/projects/idoservice

National offerings

Age UK

Age UK is the country's leading charity dedicated to helping everyone make the most of later life. Providing advice, support, information, fundraising, local services
Telephone: Advice line 0800 678 1602 free to call 8am - 7pm 365 days of the year
Weblink: https://www.ageuk.org.uk

Alzheimer’s Society

The Alzheimer’s Society provides reliable and up to date information to help you with every aspect of living with dementia.
Telephone: National Dementia Helpline: 0300 222 1122. Open 9.00am. – 5.00pm. Monday to Friday & 10.00am. – 4.00pm. Saturday and Sunday.
Weblink: https://www.alzheimers.org.uk/

Arts 4 Dementia

Art 4 Dementia is a charity with a website has resources, training, art programmes that are dementia friendly and much more. Their aim is to help preserve a fulfilling active life for longer for the person living with dementia.
Weblink: https://arts4dementia.org.uk/

Deep

DEEP is a network of groups of people with dementia across the UK. DEEP connects these groups together to share experiences and support each other. The resources available on the website provides links to these groups, a wide range of resources and DEEP Dementia Diaries from people living with dementia.
Telephone: The phone number at Innovations in Dementia is 01392 420076; who host DEEP
Weblinks: 
https://www.dementiavoices.org.uk/
https://dementiadiaries.org/

Dementia UK

Dementia UK is a national charity, committed to improving quality of life for all people affected by dementia. They provide Admiral Nurses, who work with family members and carers in all care settings along with a helpline for family members or carers who would welcome accessing advice and support.
Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/

Lewy Body Society

The Lewy Body Society is a charity whose mission is to fund research into Lewy body dementia and to raise awareness of the disease. The website provides information, support, resources and advice.
Telephone: 01942 914000
Weblink: https://www.lewybody.org/

Making Space

Making Space is a national charity working in the fields of mental health and learning disability and dementia services to people across the country.
Telephone: 01925 571 680
Email: enquiries@makingspace.co.uk
Weblink: https://makingspace.co.uk/

Music for Dementia

Music for Dementia is a national campaign to make music an integral part of dementia care in the UK. They work with more than 200 charities and organisations. The website has resources, links, guidance for health and care staff. They have advice and guidance for people living with dementia in all settings e.g. at home, in a care home.
Weblink: https://musicfordementia.org.uk/

Together In Dementia Everyday (TIDE)

Providing resources e.g. Life Story work, dealing with living grief, legal information, As well providing a carers development programme, supporting and connecting up carers, sharing of stories - for family members and carers of people living with dementia.
Weblink: https://www.tide.uk.net/

Young Dementia UK

Support for young onset dementia (under 65); providing relevant information and also shares individual stories. This is also part of Dementia UK.
Telephone: Dementia UK Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/about-dementia/young-onset-dementia/

Living with Dementia Toolkit - downloadable guide

Not everyone has access to the internet so we have produced a Guide to the Living with Dementia Toolkit that can be downloaded and printed off. We encourage peers, family members, and health and social care professionals to make use of this.

The Guide is available in English and in Welsh. It introduces the toolkit and the resources available. For the full experience of the toolkit, you need to look at the website. QR codes link you back to the website at various points. There is a 'How to use QR codes' video lower down the page.

This can be downloaded here: https://livingwithdementiatoolkit.org.uk/home/living-with-dementia-toolkit-downloadable-guide/


Living with Dementia Toolkit - downloadable guide

Welcome to the Living with Dementia Toolkit for people with dementia and their carers. This set of resources is based on research, and the expert experiences of people with dementia and their carers. If you would like to learn more about how we developed them click here. These resources are here to:


  • give you hope for the future
  • inspire you through examples of real-life experiences
  • offer ideas to help you live your life as you choose

Do you support someone living with dementia? Click here to read our Message for Carers.


Not everyone has access to the internet so we have produced a Guide to the Living with Dementia Toolkit that can be downloaded and printed off. We encourage peers, family members, and health and social care professionals to make use of this.

The Guide is available in English and in Welsh. It introduces the toolkit and the resources available. For the full experience of the toolkit, you need to look at the website. QR codes link you back to the website at various points. There is a  How to use QR codes video. In this video, Steve Milton from Innovations in Dementia shows you how to use your phone camera to scan QR codes and open webpages. This is from the 'Virtual connections' resource https://livingwithdementiatoolkit.org...


We have some boxes of Guides for groups or services to distribute. Please contact IDEAL@exeter.ac.uk if you need these.


Dementia Tip Share

Dementia Tip Share Are A Treasure Chest of Tips: to help you to keep living as well as you can

From people with dementia, for people with dementia

Are you living with a diagnosis of dementia, or think you may have it?

If you want to learn from and share with others ‘in the same boat’, you’re in the right place!
Dementia Tip-Share website is bursting with Tips, work-arounds and short cuts. All from people with dementia themselves. And these will grow and grow.
The website aims to be clear, easy to use, searchable and informative. We’d love you to use it, contribute – and even become a Tip-Sharer yourself!
Here are a few examples of some of our Tips…
Click on the arrows to see moreDementia Tip Share

Ready to get going?

Finding your way around the site…
We have tried to make this website as accessible as possible. You can increase the size of the words, or if you prefer, you can listen instead of reading (click on tabs at top right of any page). To get back to the Home Page, just click on the Back to Home arrow at the top left of the pages, and to get back to the top of the page, just click on the box at the bottom right of the page.

We need to know which Tips people are finding most useful. So, if you like a Tip, please click on the ‘Like this Tip’ icon.

The content of this website is solely and intentionally made up of Tips shared by people with dementia themselves. Innovations in Dementia is not able to take any responsibility for these, or to give ‘professional’ advice, information or sign-posting ourselves.

Dementia Diaries

Dementia Diaries gives a voice to people with dementia through more than three thousand audio and video diaries.

Why am I a Dementia Diarist?


Agnes Houston

"I'm Agnes...

and I share my Dementia Diary because I can share my happy, sad moments and I’m a part of something wonderful and I call them my pals.”


Tommy Dunne, Dementia Diaries

"I'm Tommy...

the only way you can truly learn to know what it’s like to live with dementia is to listen and learn from my peers who are here everyday living with it.”


Lorraine Brown, Dementia Diaries

"I’m Lorraine...

what inspires me to make Dementia Diaries is to record the passion and emotions of the moment.”


We bring together the many different experiences of living with dementia.

Diarists want to change the way people think about dementia, and about people with dementia.

We hope that the diaries inspire and inform people affected by dementia, and their wider communities and organisations.

Diaries can be used publicly in awareness raising and by researchers looking for insight into the lived experience of dementia.


How does the project work?

Diarists record diaries in a number of ways. Some record their diaries over the 'phone. Others send in audio or video they have recorded themselves. Our team of volunteers then transcribe the diaries, so you can read as well.

We then publish the diaries here.


Listen to some diary entries


Meet our diarists


Interested in becoming a diarist?


Dementia Friendly place of worship

Making your place of worship dementia friendly - Mosque
Making your place of worship dementia friendly - Temple
This leaflet is also available in alternative formats and additional languages.
Please email: communicationsmanchester@nhs.net or call 0161 213 1750 for more information.
Small changes that make a big difference It’s really important to make your place of worship dementia friendly and to continue to use mosques and temples.
Lighting;  improved lighting can help to prevent dark areas and shadows forming on the floor which can be confusing for someone living with dementia. Flooring;  different colours can represent something different for someone living with dementia, e.g. dark carpets or rugs can look like an object that needs to be stepped over, it may look like a hole in the floor. Blue carpets/tiles may look like water and green carpet/tiles may look like grass. Use different coloured flooring/tiling to the colouring on the walls. Wall paper/wall coverings; try not to use stripes or strong patterns. Electrical Appliances; trailing cables or wires can cause confusion and fear for someone living with dementia e.g. these wires can appear like a snake. Furniture/furnishing – living with dementia can cause confusion particularly when trying to remember where things are kept. Use pictures and labels on cupboards so people can find items easily. Mirrors – someone living with dementia may find looking in a mirror quite distressing as they may not recognise their own reflection.  Limit the number of mirrors or where possible remove mirrors

Evidence


The British Psychological Society (2014) A Guide to Psychosocial Interventions in Early Stages of Dementia: "A ‘psychosocial intervention’ is a broad term used to describe different ways to support people to overcome challenges and maintain good mental health. Psychosocial interventions do not involve the use of medication. Psychosocial interventions are available to people who have received a diagnosis of dementia and their families. They are intended to help people to live well following diagnosis. Psychosocial interventions can help with:
  • coming to terms with a diagnosis of dementia
  • maintaining your social life and relationships after diagnosis
  • reducing stress and improving your mood, for example, if feeling worried, anxious, or depressed
  • thinking and memory (cognitive function)
  • living independently
  • quality of life – maintaining health and happiness, and control over your life
  • support for your partner and family


Best Practice Resources


Meeting Centres Support Programme UK - The Meeting Centre Support Programme (MCSP) is a well-researched mode of delivering locally tailored post-diagnostic support for people living with dementia and their family caregivers.

The Meeting Centre (MC) ‘club’ is usually offered 3 days per week, supporting 10-15 people plus families on any one day in easily accessible community locations. People attend according to their need and preference three or less days a week.

Evidence-based post-diagnostic psychosocial interventions relating to information and psychoeducation and emotional, social and physical well-being are provided in a friendly manner, tailored to the needs of the local members by a small team of staff and volunteers trained in the ethos of person-centred dementia care. A moderately positive effect on sense of competence and the greater mental health benefit for lonely caregivers was demonstrated.

Guidebook for Setting up and Running a Successful Meeting Centre: - https://reshare.ukdataservice.ac.uk/852791/98/MCSP_Guidebook_V1.pdf

A guide to psychosocial interventions in early stages of dementia: - https://www.dementiavoices.org.uk/wp-content/uploads/2021/02/a_guide_to_psychosocial_interventions_in_dementia.pdf

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