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GP practices to establish and maintain a register of patients diagnosed with dementia.

When your GP receives notification of your dementia diagnosis, the practice will ensure that it is clearly recorded and entered onto the dementia register so that you can be easily identified as living with dementia.
 
For extra information, evidence and best practice please scroll down to the bottom of the page.

Evidence


NHS England/BMA (2019) 2019/20 General Medical Services (GMS) contract Quality and Outcomes Framework (QOF): "The contractor establishes and maintains a register of patients diagnosed with dementia".

"It is expected that the diagnosis will largely be recorded following patients being referred to secondary care with suspected dementia or as an additional diagnosis when a patient is seen in secondary care. However, it is also important to include patients where it is inappropriate or not possible to refer to a secondary care provider for a diagnosis and where the GP has made a diagnosis based on clinical judgement and knowledge of the patient."

NHS Digital, Recorded dementia diagnoses: "We collect and publish data about people with dementia at each GP practice. So that the NHS (GPs and commissioners) can make informed choices about how to plan their services around their patients' needs. These publications include a dementia diagnosis rate indicator, as not everyone with dementia has a formal diagnosis. This statistic compares the number of people thought to have dementia with the number of people diagnosed with dementia, aged 65 and over. These data are published every month"

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