All staff will be given training about dementia relative to their level of interaction.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Greater Manchester's Ageing Hub
Working with partners we set up the Greater Manchester Ageing Hub to respond to the opportunities and challenges of an ageing population in our city region, focusing on reducing inequalities and ageing well.
We want to improve the lives of older people in Greater Manchester, so that residents are able to contribute to and benefit from sustained prosperity and enjoy a good quality of life.
Sign up to the Greater Manchester Ageing Hub newsletter for regular information about our work.
Find out the latest news and updates across the Ageing Hub and Age Friendly Greater Manchester
The Ageing Hub Blog
A new space for the team to keep you updated on what's happening in the world of ageing
The Ageing In Place Pathfinder
The AIPP is working to make sure older people's voices are heard and valued in the places they live.
Contact Greater Manchester Ageing Hub
The Ageing Hub DigestThe Ageing Hub Digest sets out our thinking across key areas of activity. Economy and work, housing and planning, transport, culture, age-friendly places and healthy ageing are essential for Ageing well. We hope that by sharing what we are doing in Greater Manchester we will encourage more policy makers, practitioners and citizens to embrace this important agenda.
Clinical Networks for Greater Manchester and Eastern Cheshire
Weblink: NHS England and NHS Improvement North West: https://www.england.nhs.uk/north-west/gmec-clinical-networks/about-us/
Delirium Toolkits in Greater Manchester; Dementia United
Dementia Wellbeing Plan for Greater Manchester; Dementia United
End of Life Care in Greater Manchester for People With Dementia
Rules of Thumb Guide: https://dementia-united.org.uk/wp-content/uploads/sites/4/2021/01/03-UCL-Rules-of-Thumb-Guide-v14.0_PRINT-version.pdf
Greater Manchester syllabus for training on end of life care of those with dementia: https://dementia-united.org.uk/wp-content/uploads/sites/4/2021/01/2021-01-25-GM-Syllabus-v1.0.pdf
Greater Manchester Combined Local Authority
Greater Manchester Health and Social Care Partnership
GP Excellence in Greater Manchester
Quality Improvement toolkits: https://gpexcellencegm.org.uk/resources/quality-improvement-toolkits-gp-one/
GP Excellence website for Greater Manchester: https://gpexcellencegm.org.uk/
Housing for People Living With Dementia in Greater Manchester - From Policy to Practice
Mental Health Programme for Greater Manchester
In your area - Mental Health: https://hub.gmhsc.org.uk/mental-health/in-your-area/
Mental Health, Improving mental health services: https://hub.gmhsc.org.uk/mental-health/
Young Onset and Rarer Forms of Dementia
Dementia Awareness Community training package
There is growing evidence to suggest that art, music and leisure activities can offer physical and psychological benefits to those living with a dementia and their care partners, benefits which can improve their brain health and help them maintain independence for longer: (https://arts4dementia.org.uk/sp/).
This is why Trafford and Wigan councils have come together with Dementia United and GreaterSport to fund an exciting piece of work which will empower community groups, businesses and leisure providers to support people living with cognitive impairment and dementia in their communities.
The complete training package can be accessed here: www.madebymortals.org/dementia-resource/. This resource includes an immersive audio experience and PDF training materials. Dementia United are currently seeking expressions of interest from localities who would like to work with us to coordinate a train the trainer package for their communities, this will include a 3 to 4-hour workshop hosted by instructors with significant training and dementia experience and individuals who have lived experience of dementia.
DEMENTIA AWARENESS IN SOUTH ASIAN COMMUNITIES
INCREASING AWARENESS OF DEMENTIA IN SOUTH ASIAN COMMUNITIES
What we did
- Created a toolkit to support mosques and temples to become dementia friendly
- Co-produced awareness resources
- Delivered training sessions for South Asian communities to understand the signs and symptoms of dementia.
We worked with the Alzheimer’s Society to deliver some dementia awareness sessions to local groups who support people from South Asian communities.
We developed a set of ‘Through the eyes of dementia’ videos:
- A short video for mosques, temples, GP practices and on social media to help people understand some of the signs and symptoms of dementia
- A longer video for people who’ve been diagnosed with dementia. This video shows real life stories and explains the value of obtaining support from GPs, the Alzheimer’s Society, dementia nurses, social services, mental health trusts and voluntary and community sector organisations
For this purpose, we developed leaflets and posters:
- Provide information about the signs and symptoms of dementia, other causes of memory loss. Specifically, we offer information about the importance of living a healthy life and managing diabetes and other long term illnesses.
- Promote awareness of support services available in Manchester and tips for carers.
- Support places of worships to become dementia friendly.
- Raise awareness of the signs and symptoms of dementia.
It’s evident that there’s a need to continue engaging with these communities to provide dementia awareness. Additionally, we need to promote the materials created to address and reduce the stigma of dementia in South Asian communities. During the dementia awareness sessions a number of people from the South Asian communities expressed an interest in becoming a dementia champion.
- Follow up on the interest expressed in becoming a dementia champion with online training sessions being offered in partnership with South Asian voluntary, community and social enterprise organisations.
- Link in to existing South Asian communications channels (Asian Sound radio, local TV channels and mosques and temples) to promote awareness of symptoms of dementia and cultural support available.
- Continue to engage with South Asian communities to provide dementia awareness sessions, question and answer sessions and to promote the materials created
- Consider how culturally appropriate commissioned dementia services are and how they both understand concerns from the BAME community and respond to their needs
- Develop a communications plan to support the team to continue to share the resources.
Telephone: Advice line 0800 678 1602 free to call 8am - 7pm 365 days of the year
Alzheimer's Research UK
Telephone: National Dementia Helpline: 0300 222 1122. Open 9.00am. – 5.00pm. Monday to Friday & 10.00am. – 4.00pm. Saturday and Sunday.
Telephone: 0800 88 6678
NHS England Dementia
- Developing an access and waiting time standard for dementia, so people with dementia have equal access to diagnosis as for other conditions; setting the national average for an initial assessment
- Achieving and maintaining the dementia diagnosis rate. NHS England agreed a national ambition for diagnosis rates that two thirds of the estimated number of people with dementia in England should have a diagnosis with appropriate post-diagnostic support
- Post diagnostic care and support; as there has been substantial progress on diagnosis, NHS England will focus on improving post-diagnostic support
NHS England have developed a Dementia Well Pathway which outlines standards across all aspects of the Pathway from prevention, diagnosing, supporting, living and dying well.
The NHS England dementia-well-pathway can be accessed here: https://www.england.nhs.uk/mentalhealth/wp-content/uploads/sites/29/2016/03/dementia-well-pathway.pdf
You can access the NHS England dementia programme of work here: https://www.england.nhs.uk/mental-health/dementia/
NICE Dementia Guidance
We have provided links to the NICE guideline for dementia and a further link is provided to guidance on how to delay or prevent the onset of dementia.
National Institute for Health and Clinical Excellence (NICE) NG16 (2015) Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset: https://www.nice.org.uk/guidance/ng16
National Institute for Health and Clinical Excellence (NICE) (2019) Dementia: assessment, management and support for people living with dementia and their carers: https://www.nice.org.uk/guidance/ng97
Social Care Institute for Clinical Excellence - End of Life Care Resources
Carers’ needs - End-of-life care and dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/advanced-dementia/
Advanced Dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/end-of-life-care/last-days-hours.asp
End of life care - dying at home: https://www.scie.org.uk/socialcaretv/video-player.asp?v=dyingathome
Think Local Act Personal (TLAP)
Young Dementia UK
Telephone: Dementia UK Telephone: 0800 88 6678
Telephone: Call: 03000 683 000 between the hours of 08:30 – 17:30 Monday to Friday
Eating and Drinking well: supporting people living with dementia
Films can be accessed here: https://www.youtube.com/watch?v=dlYPTTibTO8&t=28s
ADAPT South Asian Dementia Pathway
ADAPT South Asian Dementia Pathway toolkit consists of two sections.
1. The dementia care pathway
This section deals with three stages of the dementia care pathway: dementia awareness; dementia diagnosis and assessment; and interventions for people living with dementia and their families.
2. Working better together
There are also differences in how people from south Asian communities use dementia services. People from south Asian communities are more likely to miss or misinterpret their Dementia symptoms . Moreover, they often have less access to NICE recommended treatments including medication. They are more likely to rely on local, ethnic group-led community organisations for support. All of these differences mean that south Asians with dementia are often disadvantaged compared to their white counterparts.
The UK network of dementia voices - DEEP:
The UK network of dementia voices brings together resources we have produced with DEEP groups, as well as resources they have produced independently.
It also includes resources we have produced for DEEP groups, to help them run more smoothly and more effectively.
What is dementia? In South Asian communities there is not a single word that describes dementia. Dementia is a set of symptoms that may include problems remembering, speaking and understanding. Dementia is a medical condition and not a natural part of ageing.
There is often a misunderstanding that dementia is a punishment for something that has happened in a past life or as a result of black magic. These beliefs often mean a delay in diagnosis but it is really important to get an early diagnosis so you and help with managing this condition.
Can we prevent dementia? We don’t yet understand dementia well enough to know if it can be prevented and researchers are still investigating how the disease develops. However, there’s good evidence that a healthy lifestyle can help reduce the risk.
Memory assessment If a GP is concerned about the possibility of dementia they may recommend a memory test. If needed they may make a referral to the memory assessment service. Interpreters can be requested for any GP or hospital appointment.
This leaflet is also available in alternative formats and additional languages. Please email: firstname.lastname@example.org or call 0161 213 1750 for more information.
Dementia risk factors and prevention
Some things can increase your risk of getting dementia, including your age, genes and lifestyle. There are also ways you can reduce your risk.
What to expect from health and care services
- Delirium and its relationship to dementia is included in the training
- Information about the number of staff who received dementia training is recorded
NICE, Social care for older people with multiple long-term conditions: "Those responsible for contracting and providing care services should ensure health and social care practitioners caring for older people with social care needs and multiple long-term conditions are assessed as having the necessary training and competencies in managing medicines. Ensure health and social care practitioners are able to recognise, consider the impact of, and respond to: common conditions, such as dementia, hearing and sight loss, and common care needs, such as nutrition, hydration, chronic pain, falls and skin integrity, and common support needs, such as dealing with bereavement and end-of-life, and deterioration in someone's health or circumstances."
Training will be given in line with the Dementia Core Skills and Training Framework. The level of training will be:
- Tier 1: For all staff.
- Tier 2: For staff who have regular contact with people living with dementia.
- Tier 3: For staff who work specifically with people living with dementia, are experts or leaders in the area.
Hidden No More: Dementia and disability: "All home care and residential care staff should receive mandatory training. This should be equivalent to Tier 2 of the Department of Health and Social Care-backed Dementia Core Skills Education and Training Framework, provided by Health Education England. "
Best Practice Resources
Greater Manchester Health Innovation and Education Cluster have developed training materials to support staff working on dementia awareness in general hospitals.: https://dementiapartnerships.com/resource/getting-to-know-me-supporting-people-with-dementia-in-general-hospitals/