At least two-thirds of people with dementia will receive a formal diagnosis.
For extra information, evidence and best practice please scroll down to the bottom of the page.
NHS England Dementia
- Developing an access and waiting time standard for dementia, so people with dementia have equal access to diagnosis as for other conditions; setting the national average for an initial assessment
- Achieving and maintaining the dementia diagnosis rate. NHS England agreed a national ambition for diagnosis rates that two thirds of the estimated number of people with dementia in England should have a diagnosis with appropriate post-diagnostic support
- Post diagnostic care and support; as there has been substantial progress on diagnosis, NHS England will focus on improving post-diagnostic support
NHS England have developed a Dementia Well Pathway which outlines standards across all aspects of the Pathway from prevention, diagnosing, supporting, living and dying well.
The NHS England dementia-well-pathway can be accessed here: https://www.england.nhs.uk/mentalhealth/wp-content/uploads/sites/29/2016/03/dementia-well-pathway.pdf
You can access the NHS England dementia programme of work here: https://www.england.nhs.uk/mental-health/dementia/
NICE Dementia Guidance
We have provided links to the NICE guideline for dementia and a further link is provided to guidance on how to delay or prevent the onset of dementia.
National Institute for Health and Clinical Excellence (NICE) NG16 (2015) Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset: https://www.nice.org.uk/guidance/ng16
National Institute for Health and Clinical Excellence (NICE) (2019) Dementia: assessment, management and support for people living with dementia and their carers: https://www.nice.org.uk/guidance/ng97
Young onset Dementia: Decision-making guide for GPs
The government is focused on increasing the number of people who can access a diagnosis of dementia. They set a target of at least two thirds of people who have dementia are able to access a formal diagnosis.
Department of Health and Social Care (2019) The Government's revised mandate to NHS England for 2018-19: "Maintain a minimum of two-thirds diagnosis rate for people with dementia."
Department of Health (2016) Prime Minister's Challenge on Dementia 2020 Implementation Plan: "NHS England has achieved the aim of increasing the proportion of people with dementia who are able to get a formal diagnosis from under half, to at least two-thirds of people affected. However, we need to maintain this minimum level over time and address the underlying variation between CCGs in diagnosis rates and availability of post-diagnosis support."
Best Practice Resources
- involving people living with dementia in decisions about their care assessment and diagnosis
- interventions to promote cognition, independence and wellbeing
- pharmacological interventions
- managing non-cognitive symptoms
- supporting carers
- staff training and education