Carers of people living with dementia have access to support and a regular review of their needs.

We believe all carers have a right to be respected, valued and supported, equally in their caring role, as experts for their cared for and as individuals in their own right.
Weblinks:
Carers charter: https://www.gmhsc.org.uk/wp-content/uploads/2018/04/Carers-Charter-FINAL.pdf
Greater Manchester working carer toolkit: https://sccdemocracy.salford.gov.uk/documents/s16450/Item%209%20-%20Appendix%20B%20-%20GM%20Working%20Carers%20Toolkit%201%20-%204%204%2019.pdf

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The Greater Manchester dementia wellbeing plan promotes personalised planning conversations with people living with dementia and carers about their needs and wants. The plan ensures an improved standard of care planning for people living with dementia and also facilitates sharing across the system. It will be available as a standardised plan which can be accessed and shared digitally between practitioners; as well as being available from the website for people affected by dementia to be using when having person centred care plan reviews
Weblink: https://dementia-united.org.uk/dementia-wellbeing-plan/

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Working towards improving the quality of life for people living with dementia or caring for someone who has dementia, supporting people to live as independently as possible and providing access to services when needed.
Weblink: https://dementia-united.org.uk/

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The report and recommendations within it are part of an extensive period of consultation over the past 18 months and including more than 250 stakeholders across housing, health and social care in Greater Manchester, alongside people with lived experience of dementia, carers and loved ones.
Weblink: https://dementia-united.org.uk/housing/

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Meets online 1st Tuesday of the month. People with dementia and family/carers are welcome to join.
Contact Maggie Hurley - to get the details to join the meeting.
Email: Maggie.Hurley@ageukoldham.org.uk
Weblink: https://dementia-united.org.uk/news/2021/07/13/new-gm-lgbtq-online-dementia-support-group/

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It is estimated there are over 42,000 people in the UK diagnosed with young onset dementia (a diagnosis received under the age of 65). Having young onset dementia brings unique challenges. We are lucky to have a specialist diagnostic centre at the Salford Cerebral Function Unit however referrals from across Greater Manchester vary. People under the age of 65 are more likely to still be working and possibly have younger families and financial commitments. As young onset dementia is rare compared to dementia over the age of 65, services are often not age appropriate.
Weblink: https://dementia-united.org.uk/young-onset-and-rarer-forms/

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Age UK is the country's leading charity dedicated to helping everyone make the most of later life. Providing advice, support, information, fundraising, local services
Telephone: Advice line 0800 678 1602 free to call 8am - 7pm 365 days of the year
Weblink: https://www.ageuk.org.uk

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The Alzheimer’s Society provides reliable and up to date information to help you with every aspect of living with dementia.
Telephone: National Dementia Helpline: 0300 222 1122. Open 9.00am. – 5.00pm. Monday to Friday & 10.00am. – 4.00pm. Saturday and Sunday.
Weblink: https://www.alzheimers.org.uk/

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The main benefit for carers is called Carer's Allowance and it's worth £67.60 (April 2021 – March 2022) to help you look after someone with substantial caring needs.
Telephone: contact The Carers Allowance Unit on: 0800 731 0297.
Weblink: https://www.gov.uk/carers-allowance

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Caring will affect us all at some point in our lives. We'll be here for you when that happens. With your help, we can be there for the 6,000 people who start looking after someone each day.
Telephone: 020 7378 4999
Weblink: https://www.carersuk.org/help-and-advice

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Provide free carers courses, support and connecting carers up with a wider network, offer a virtual carers centre.
Weblink: https://dementiacarers.org.uk/

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Dementia UK is a national charity, committed to improving quality of life for all people affected by dementia. They provide Admiral Nurses, who work with family members and carers in all care settings along with a helpline for family members or carers who would welcome accessing advice and support.
Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/

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The Lewy Body Society is a charity whose mission is to fund research into Lewy body dementia and to raise awareness of the disease. The website provides information, support, resources and advice.
Telephone: 01942 914000
Weblink: https://www.lewybody.org/

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This guideline brings together all the research and evidence which covers assessment, diagnosis, treatment and support. It is for people at risk of developing dementia, people who are referred for assessment, people living with dementia as well as being for family and friends and health and social care staff and commissioners. It aims to improve care by making recommendations on standards people should expect to receive from their assessment, care and support as well as on training.
Weblinks:
We have provided links to the NICE guideline for dementia and a further link is provided to guidance on how to delay or prevent the onset of dementia.
National Institute for Health and Clinical Excellence (NICE) NG16 (2015) Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset: https://www.nice.org.uk/guidance/ng16
National Institute for Health and Clinical Excellence (NICE) (2019) Dementia: assessment, management and support for people living with dementia and their carers: https://www.nice.org.uk/guidance/ng97

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Rare Dementia Support (RDS) is a world-leading, UK-based service led by the UCL Dementia Research Centre (DRC). We aim to empower, guide and inform people living with a rare dementia diagnosis and those who care about them.
Weblink: https://www.raredementiasupport.org/

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When a person is living with advanced stages of dementia, all areas of human ability are severely compromised. They have to rely on others for social engagement, occupation and activities of daily living. This section looks at what it's like to live with advanced dementia, communication and the impact on carers.
Weblinks:
Carers’ needs - End-of-life care and dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/advanced-dementia/
Advanced Dementia: https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/end-of-life-care/last-days-hours.asp
End of life care - dying at home: https://www.scie.org.uk/socialcaretv/video-player.asp?v=dyingathome

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Providing resources e.g. Life Story work, dealing with living grief, legal information, As well providing a carers development programme, supporting and connecting up carers, sharing of stories - for family members and carers of people living with dementia.
Weblink: https://www.tide.uk.net/

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Support for young onset dementia (under 65); providing relevant information and also shares individual stories. This is also part of Dementia UK.
Telephone: Dementia UK Telephone: 0800 88 6678
Email: direct@dementiauk.org
Weblink: https://www.dementiauk.org/about-dementia/young-onset-dementia/

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Healthwatch is your health and social care champion. If you use GPs and hospitals, dentists, pharmacies, care homes or other support services, we want to hear about your experiences. As an independent statutory body, we have the power to make sure NHS leaders and other decision makers listen to your feedback and improve standards of care. Last year we helped nearly a million people like you to have your say and get the information and advice you need.
Telephone: Call: 03000 683 000 between the hours of 08:30 – 17:30 Monday to Friday
Email: enquiries@healthwatch.co.uk
Weblink: https://www.healthwatch.co.uk/your-local-healthwatch/list

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