Clear information is made available to people with dementia, carers, and healthcare practitioners about the Memory Assessment Service.
For extra information, evidence and best practice please scroll down to the bottom of the page.
DEMENTIA AWARENESS IN SOUTH ASIAN COMMUNITIES
INCREASING AWARENESS OF DEMENTIA IN SOUTH ASIAN COMMUNITIES
What we did
- Created a toolkit to support mosques and temples to become dementia friendly
- Co-produced awareness resources
- Delivered training sessions for South Asian communities to understand the signs and symptoms of dementia.
We worked with the Alzheimer’s Society to deliver some dementia awareness sessions to local groups who support people from South Asian communities.
We developed a set of ‘Through the eyes of dementia’ videos:
- A short video for mosques, temples, GP practices and on social media to help people understand some of the signs and symptoms of dementia
- A longer video for people who’ve been diagnosed with dementia. This video shows real life stories and explains the value of obtaining support from GPs, the Alzheimer’s Society, dementia nurses, social services, mental health trusts and voluntary and community sector organisations
For this purpose, we developed leaflets and posters:
- Provide information about the signs and symptoms of dementia, other causes of memory loss. Specifically, we offer information about the importance of living a healthy life and managing diabetes and other long term illnesses.
- Promote awareness of support services available in Manchester and tips for carers.
- Support places of worships to become dementia friendly.
- Raise awareness of the signs and symptoms of dementia.
It’s evident that there’s a need to continue engaging with these communities to provide dementia awareness. Additionally, we need to promote the materials created to address and reduce the stigma of dementia in South Asian communities. During the dementia awareness sessions a number of people from the South Asian communities expressed an interest in becoming a dementia champion.
- Follow up on the interest expressed in becoming a dementia champion with online training sessions being offered in partnership with South Asian voluntary, community and social enterprise organisations.
- Link in to existing South Asian communications channels (Asian Sound radio, local TV channels and mosques and temples) to promote awareness of symptoms of dementia and cultural support available.
- Continue to engage with South Asian communities to provide dementia awareness sessions, question and answer sessions and to promote the materials created
- Consider how culturally appropriate commissioned dementia services are and how they both understand concerns from the BAME community and respond to their needs
- Develop a communications plan to support the team to continue to share the resources.
MSNAP Memory Assessment Service Standards
Telephone: Call: 03000 683 000 between the hours of 08:30 – 17:30 Monday to Friday
ADAPT South Asian Dementia Pathway
ADAPT South Asian Dementia Pathway toolkit consists of two sections.
1. The dementia care pathway
This section deals with three stages of the dementia care pathway: dementia awareness; dementia diagnosis and assessment; and interventions for people living with dementia and their families.
2. Working better together
There are also differences in how people from south Asian communities use dementia services. People from south Asian communities are more likely to miss or misinterpret their Dementia symptoms . Moreover, they often have less access to NICE recommended treatments including medication. They are more likely to rely on local, ethnic group-led community organisations for support. All of these differences mean that south Asians with dementia are often disadvantaged compared to their white counterparts.
The UK network of dementia voices - DEEP:
The UK network of dementia voices brings together resources we have produced with DEEP groups, as well as resources they have produced independently.
It also includes resources we have produced for DEEP groups, to help them run more smoothly and more effectively.
What is dementia? In South Asian communities there is not a single word that describes dementia. Dementia is a set of symptoms that may include problems remembering, speaking and understanding. Dementia is a medical condition and not a natural part of ageing.
There is often a misunderstanding that dementia is a punishment for something that has happened in a past life or as a result of black magic. These beliefs often mean a delay in diagnosis but it is really important to get an early diagnosis so you and help with managing this condition.
Can we prevent dementia? We don’t yet understand dementia well enough to know if it can be prevented and researchers are still investigating how the disease develops. However, there’s good evidence that a healthy lifestyle can help reduce the risk.
Memory assessment If a GP is concerned about the possibility of dementia they may recommend a memory test. If needed they may make a referral to the memory assessment service. Interpreters can be requested for any GP or hospital appointment.
This leaflet is also available in alternative formats and additional languages. Please email: email@example.com or call 0161 213 1750 for more information.
Dementia risk factors and prevention
Some things can increase your risk of getting dementia, including your age, genes and lifestyle. There are also ways you can reduce your risk.
What to expect from health and care services
- The name and designation of the professional that they will see;
- An explanation of the assessment process;
- Information on who can accompany them;
- How to contact the team if they have any queries, require support (e.g. an interpreter), need to change the appointment or have difficulty in getting there.
Research Paper, Disclosing a dementia diagnosis: what do patients and family consider important?: "Recall of information from the feedback session was variable. Most respondents (76% of patients; 66% of carers) thought that a direct approach was best when informing the patient of a dementia diagnosis, and that both written information and compassion demonstrated by the doctor were helpful. Opinions on whether all the information should be given at once or in stages were divided."
Best Practice Resources
Dementia engagement and empowerment project (DEEP), Writing dementia-friendly information: - http://dementiavoices.org.uk/wp-content/uploads/2013/11/DEEP-Guide-Writing-dementia-friendly-information.pdf
Commissioned by NHS England, Leeds Beckett University worked in partnership with a wide range of partners (including contributions from Greater Manchester and Dementia United) to produce a guide to supporting continued development, improvement and innovation in Memory Assessment Services, which is available by clicking here The reference for this is Surr et al 2021 'Taking Memory Assessment Services into the future: A guide to supporting continuous development, improvement and innovation in memory assessment services. Leeds Beckett University.