A named service for dementia advice and navigation is provided.
At your first meeting with this service, they will help create or review your personalised dementia care plan. They will also discuss the dementia care pathway and discuss where you are up to on this document and how best to use it to inform what you can access in your community.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Dementia Navigation Standards for Greater Manchester
Dementia Wellbeing Plan for Greater Manchester; Dementia United
Dementia Carers Count
NICE Dementia Guidance
We have provided links to the NICE guideline for dementia and a further link is provided to guidance on how to delay or prevent the onset of dementia.
National Institute for Health and Clinical Excellence (NICE) NG16 (2015) Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset: https://www.nice.org.uk/guidance/ng16
National Institute for Health and Clinical Excellence (NICE) (2019) Dementia: assessment, management and support for people living with dementia and their carers: https://www.nice.org.uk/guidance/ng97
Together In Dementia Everyday (TIDE)
Young Dementia UK
Telephone: Dementia UK Telephone: 0800 88 6678
Telephone: Call: 03000 683 000 between the hours of 08:30 – 17:30 Monday to Friday
Dementia Tip Share
Dementia Tip Share Are A Treasure Chest of Tips: to help you to keep living as well as you can
From people with dementia, for people with dementia
If you want to learn from and share with others ‘in the same boat’, you’re in the right place!
Dementia Tip-Share website is bursting with Tips, work-arounds and short cuts. All from people with dementia themselves. And these will grow and grow.
The website aims to be clear, easy to use, searchable and informative. We’d love you to use it, contribute – and even become a Tip-Sharer yourself!
Ready to get going?
We need to know which Tips people are finding most useful. So, if you like a Tip, please click on the ‘Like this Tip’ icon.
The content of this website is solely and intentionally made up of Tips shared by people with dementia themselves. Innovations in Dementia is not able to take any responsibility for these, or to give ‘professional’ advice, information or sign-posting ourselves.
The NICE quality standard [QS184] for dementia explains that people with dementia should have a single named practitioner to coordinate their care. The duties of the named practitioner should include:
- arrange an initial assessment of the person's needs, which should be face to face if possible
- provide information about available services and how to access them
- involve the person's family members or carers (as appropriate) in support and decision making
- give special consideration to the views of people who do not have capacity to make decisions about their care, in line with the principles of the Mental Capacity Act 2005
- ensure that people are aware of their rights to and the availability of local advocacy services, and if appropriate to the identification of an independent mental capacity advocate
- develop a care and support plan
One of the five aims from the Dementia Action Alliance 'The Carers' Call to Action' campaign, which aims to ensure that everyone who supports someone living with dementia knows their rights and is able to get the necessary level of support, states: Family carers of people with dementia should have access to a named person, with expertise in dementia care, who can give them personalised information, advice, support and co-ordination of care for the person with dementia.
Evidence demonstrates that people with dementia want to be connected with appropriate services and having someone specifically assigned to this role is both appropriate and valuable. It really does not matter what that person is called – connector, navigator, advisor, co-ordinator – but it does matter that the contact person is embedded in the care system, has the credibility and authority to act as an agent for the person with dementia within a well-defined geographical area and has the necessary communication skills to interact with clinical and other providers.