Greater Manchester’s Dementia Care Pathway
QUALITY STANDARDS
Ensure safeguarding issues are identified and appropriately handled.
You are reassured and offered sensitive and welcomed support from your doctor and other health and care professionals when you report increased stress, strain and feeling overwhelmed as a carer; particularly when the person you are supporting is presenting with behaviour that is challenging your care and support.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
Identify people living with dementia who are nearing the end of their lives.
You may struggle to identify when the person you are caring for is moving in to a more palliative stage of their dementia. Health and care staff are provided with the training and resources to be able to identify this stage and provide the support that the person needs.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
GPs should maintain a Palliative Care Register for those in the last 12 months of life.
Your medical team, in conversation with yourself and your friends and family are looking to recognise that you have more palliative care needs and that these can be provided for at home.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
People living with dementia should not be placed out of area for non-specialist mental health acute care.
If you require an admission to hospital, in to a mental health setting, you will be admitted to somewhere as near as possible to your home which enables your family and friends to visit and keep in touch.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
GP has regular (at least 3 monthly) multidisciplinary case review meetings where all patients on the palliative care register are discussed.
You are involved in regular reviews with your doctor and other health and care staff, that enable you to ask for more support and adapt the support that you have to your changing needs.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
Shared decision-making in personalised care and support planning.
You are engaged with, listened to and heard as an equal partner in care decisions, this includes your family members too and is at the heart of all the interactions with health and care staff as you enter a palliative stage of your dementia. This includes referring to any advance care planning, advance directives and consulting with your registered lasting powers of attorneys for health and welfare.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
Personal health budgets are required to be offered - as part of NHS funded care, as well by social care funded support with individual budgets.
Personal health budgets are required to be offered - as part of NHS funded care, as well by social care funded support with individual budgets. You are offered a personal budget, individual budget which enables you and your family to plan for your personalised care needs, including at the palliative stage of your dementia journey.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
Carers are supported and enabled to make decisions about their wish to continue to care.
You are offered the space and time to consider your caring role, with personalised support and as needed an offer of respite from your caring role.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
Shared decision-making in personalised care and support planning.
You are engaged with, listened to and heard as an equal partner in care decisions, this includes your family members too and is at the heart of all the interactions with health and care staff as you enter a palliative stage of your dementia. This includes referring to any advance care planning, advance directives and consulting with your registered lasting powers of attorneys for health and welfare.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
After a person has died, it is important that carers are supported to grieve.
You are provided with the support that you need, as and when you require it, following the death of your loved one.
For extra information, evidence and best practice please scroll down to the bottom of the page.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
Bereaved carers are provided with social prescribing
Bereaved Carers are entitled to a carer assessment which can be done through local social services or an approved assessor. Carers who spend at last 35 hours a week caring for someone who needs ‘substantial and regular’ care may be able to claim carers allowance. Carers may experience anticipatory grief.
You are offered support, such as from Social Prescribing link workers, that may help with your grief process and loss.
For extra information, evidence and best practice please scroll down to the bottom of the page.
You are offered support, such as from Social Prescribing link workers, that may help with your grief process and loss.
For extra information, evidence and best practice please scroll down to the bottom of the page.
Priority
:
Required
Should
Ambition
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